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Rejuvenate, Revitalize, Remember, or Did We?
By Joel de Vera Moncada
This year's United States Conference on AIDS (USCA) afforded
a good amount of rest and relaxation at a first-rate resort
hotel, unfortunately the conference theme, "Rejuvenate,
Revitalize, Remember," failed to resonate throughout. As
a new face to HIV service field, USCA was my first national
convening to listen and learn from AIDS service organizations
(ASO) from all regions of the United States. Attending
without any expectations, the conference fell short in empowering
me about how I can better serve Asian and Pacific Islander
men who have sex with men (MSM) and queer youth. Despite
my overall impression of USCA, a few themes spark my thoughts
and experience, specifically seclusion and storytelling.
At an early plenary, a forthright tension ignited from gay
Black Men about financial resources and their communities
greatly affected with the HIV/AIDS epidemic. From my
understanding, much of this tension was forwarded to Black
Women, who too are in need of our limited financial resources. What
disturbs me about this confrontation is the unnecessary reoccurrence
of "Oppression Olympics,” the sentiment that one
community is more oppressed than the next. As
a provider for the Asian and Pacific Islander community,
we too are struggling with HIV/AIDS killing our communities.
We must remember that these conferences are not to seclude
and fight each other, but align our issues to collaborate
together.
Furthermore, throughout the conference I could
not help but be reminded of Beverly Tatum’s, “Why
are all the [Asian] Kids Sitting Together in the Cafeteria?” The
intent behind this statement is not too attack other communities
present at the conference, but to respectfully share the
visible division of communities of color. I found myself
particularly networking with other Asian and Pacific Islander
AIDS service organizations impart due to our relatively small
attendance. One might call this personally isolating
myself from other ASOs of color; on the other hand, it was
necessary for me to connect our work serving Asian and Pacific
Islanders. With this said, I do hope, as other A&PI
HIV providers have told me about previous USCAs, we can be
a bigger presence in the continuing years, not to fight for
resources, but to voice the stories of the people we serve.
Luckily while the conference did have its uncomfortable
moments, they were times I personally found profoundly significant
to share. I attended a well prepared presentation about
how collaboratively youth and providers can approach legislators
to raise awareness about young people affected by HIV/AIDS. In
this workshop, it was a delightful moment to count more youth
than providers in attendance. Secondly, one youth shared
her stories fighting HIV/AIDS, even disclosing to us that
her infection came from her birth mother. As a youth provider,
I have yet to experience working with young people living
with HIV. For me, her story shook me in a way that
propelled me to think critically about doing HIV/AIDS prevention
work. While I am doing prevention on a direct-individual
level, how can I think larger about HIV prevention and doing
prevention with young-positives? It stories like hers
that I believe should impact all of us to question who is
more oppressed by HIV/AIDS than the other.
In closing, what I must remember about USCA is that HIV/AIDS
does not discriminate along age, race, gender, sexuality,
and/or class and with that knowledge alone we cannot afford
to discriminate against each other. Every community
is hit with HIV/AIDS! Therefore, we must listen and learn
from these stories so we can better serve and save.
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USCA Title Waves
By Anthony Huynh
Perhaps the title of this report may seem misleading; don’t
get me wrong, there were no hurricane, no thunderstorm and
lucky for us there were no tsunami, phew! The conference
was held in the luxurious (to me it is) Westin Diplomat Hotel
(and yes I did get my STARWOOD POINTS!) in Hollywood
Florida, about 2 miles south of Fort Lauderdale and 12 miles
north of South Beach Miami, a great place that match the
theme of the conference “Rejuvenate, Revitalize, Remember”. Throughout
the conference I feel exactly just that, each day I feel
rejuvenated after my relaxation in the huge tub (in my hotel
room) filled with hot water and bubbles, I feel revitalized
after a long afternoon break on the beach gazing at the clear
blue calm water with my head cleared and freed from every
stressful aspect of life (until my alarm rang and remind
me the next session starts in 5 minutes) and that short moment
of peace just eliminated a life time of stress for me. Yet
the most important thing about this conference for me is
the part about remember-ed-ing the segment of each
day; one that make me feel embarrassed, up set, intimidated,
belittled, and very little joy, and that is the title of
people I bumped into at the conference, there were Researchers,
PH.D, Doctors, LCSW, MSW, MPH, MA, Data Analyst, Evaluators,
Executive Directors, Directors, Project Managers, Project
Officers, Chairs, Co-Chairs, President, Epidemiologists and
the list go on and on with some that I couldn’t even
pronounce.
My point of all this is almost every workshops I attended
were filled with the people whose title attached to their
names and the hundreds slide of graphs with red, blue, yellow
and all the color you can imagine with lines that goes up
and down and some oddly shaped I thought were bad motor skilled;
but to them these represents a pattern with numerical “data” collected
which tell them some information about the study “participants” and
some called it “subjects” behavioral trends
that allow them to analyze and draw conclusion about a certain “population”. As
I sat there and listen patiently as they go through their
sophisticated slides created using expensive software from
their million dollar (don’t quote me, from what I saw
and heard it looks like that) “scientifically sound” research
project and replacing people with terms like “subjects” “variables” “values” and
Elements” I can’t help it but feeling intimidated,
in due part because it made me realized that I am not academically
trained enough to ask question or interpret their data. Embarrassed
because the presenter gave me that look as if I were too
stupid to understand his research and refer me back to his
25th slide after I asked him a question about the people
(demographic) made up of his research which he referred to
as “study subjects” and I am upset at the fact
that these highly educated people with big titles and their
research has failed to show me any impact made through their
so call “scientifically sound” research. But
what I get is their common answer “hopefully these
numbers will inform us to conduct better research in the
future” (great, more research is exactly what we need;
eyes rolled). At the moment I felt a sense of lost,
frustration, and really sad because I don’t see enough
of frontline staff at this conference, I don’t see
enough of practical skill building workshop, I don’t
see forum for frontline staff to meet and exchange information,
shared best practices and I don’t mean the kind that
in the form of research but on the streets, in the bars,
in shooting alley, sex clubs, bathhouses, tell their stories,
tell their experiences, challenges and the great impact they’ve
made on people’s lives. I am tired of hearing
researchers presented on same repeated theme about drugs
and its impact on people’s behavior and they all came
up with the same conclusion with different wording. I
am tired of hearing program managers, program directors,
complaining about the lack of resources while they praise
million dollar research that has very little or no impact
on the people they serve.
Ok, so now that my ranting is out of the way. Here
is my highlight of the conference. Finally a sense
of hope; Sunday afternoon session titled “The evolution
of a Transgender HIV Prevention Program into a Rapid Testing
Project, TIPS (Transgender, Intervention and Prevention Services)”. Based
in South Beach Miami Florida, the project coordinator, Leslie
Mena was one of the presenters. Leslie is a self identified
Transgender woman from Cuba, she was pretty, she was humorous,
she was sincere, and she was a person of inspiration to me. Leslie
presentation did not involve any computer slides or any numbers,
or any scientific conclusion. Her presentation was
purely about the transgender persons that she spend night
after night late hours trying to educate them about HIV/STDs,
protect them from being harassed by the police, shelter them
in safe houses, support them with groups and help them get
off the streets by training them one by one how to get regular
jobs. This was a heart felt moment for me, an eye opener
by hearing how dedicated Leslie is and how creative she was
with the little funding that she has to work with. And
it daunting to me when I think about the million dollar research
that made little or no impact on the people that participate
in the study (transgender included) but a small funded program
like the one Leslie created made a whole world of difference
for the transgender persons living in South Beach Florida. At
the end of the presentation, Leslie said something that is
so simple, yet so profound that actually shed tears to my
eyes is when she said “when you want to serve/help
the Transgender or any body you do it with love, start from
your heart and find the funding to meet their needs and not
what they have to do to meet the funding criteria”. I
felt like lightening just hit me and I can’t help it
but feeling shamed because I wonder if I too lost that sense
of connectedness to the community that I serve.
With that said, in my conclusion I want to acknowledge NMAC
for putting on this conference and ensuring the diversity
of attendees. At the same time I also feel responsible
for the lack of presence of my co-workers who are frontline
staff who could have benefit greatly at this conference. This
conference can be a source of inspiration for some and to
me its another year of titles and research. So the
lesson learned for me is, its not the titles that counts
but the work that come from the heart often makes huge difference
that went unnoticed. As corny as that sound, this
simple philosophy changed my life.
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